Speak for Yourself is a movement to build a network of individuals with disabilities who are trained and empowered to become directly involved in health-related scientific research that addresses the health questions that matter most to people with disabilities and their families. This type of research is called patient-centered outcomes research (or PCORI), because it is centered around what matters to the individual and their family with the goal of learning things that will help people with disabilities make informed decisions about their health.

We want to hear and learn from you on the importance of health-related research for people with disabilities.



The second survey is now closed. Be sure to check back for more information on upcoming surveys! 




This program was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award.