Be a part of Speak for Yourself by taking part in one of our Twitter chats using the #UCPSFY. Join us for our first chat on February 15, 2017 at 2:00 pm EST, discussing Self-Advocacy and your health! Self-Advocacy is an essential part of the Patient-Centered Research approach. This Twitter chat aims at giving participants the tools and…
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Webinar
Join us for Speak for Yourself presents “What Matters to You?: A Guide to Patient-Centered Research for People With Disabilities.” When: January 18, 2017 at 2:00 pm This webinar will explore how people with disabilities can advocate for their own health needs in a way that centers the focus on what is important to the individual….
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(Click to view invitation) UCP’s Speak for Yourself Workshop – September 22, 2017 in Washington, DC! This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award.
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FOR IMMEDIATE RELEASE Contact: Randi Moore, (202) 494-4638 UCP Launches “Speak for Yourself,” a PCORI-Funded Project to Establish a Patient-Centered Research Network for Individuals with Disabilities Washington, D.C. (May 3, 2016) – United Cerebral Palsy (UCP) has launched Speak for Yourself, a two-year project funded through a Patient-Centered Outcomes Research Institute (PCORI)…
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UCP, in partnership with the Patient-Centered Outcomes Research Institute (PCORI), is excited to launch Speak for Yourself, a movement to build a network of individuals with disabilities who are trained and empowered to become directly involved in the research that improves their health outcomes. Relevant and well-informed patient-centered clinical research is essential to advancing healthcare…
Read More of "Speak for Yourself"What You Need to Know about Preventative Care and Disability
Having a disability doesn’t make you immune to the typical health care needs that everyone experiences, but sometimes it can make it more complicated to access the preventative care you need to stay as healthy as possible. In the second installment of the What You Need to Know series, we intend to tackle preventative…
Read More of "What You Need to Know about Preventative Care and Disability"What You Need to Know about Sexual and Reproductive Health and Disability
Safe, affordable, and reliable access to sexual and reproductive health services is an important thing for anyone engaging in sexual activity, and it is something everyone needs to talk about, and it is especially important to make sure disability is considered in the conversation. As we have mentioned before, the existence of disability does not…
Read More of "What You Need to Know about Sexual and Reproductive Health and Disability"Speak for Yourself: Self Advocacy and Your Health
As a young adult with a disability, I hear the term, “self advocacy” a lot. My mother has always encouraged me to prioritize my own needs, and express them to other people. In the disability community, “nothing about us without us,” is a common slogan, used as a constant reminder that people with disabilities need…
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